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Living With Cancer |
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If your
parent is dying
There may come a time when you
realise that your parent is not
going to get better. The spread of
cancer can no longer be slowed and
treatment and testing will cease.
During this time you and your family
will not be alone as there are many
specialist medical and nursing staff
that will look after you all.
Medications for pain relief and
other symptoms (i.e. to stop nausea
etc) are given so that your parent
is made as comfortable as possible.
This is often called ‘palliative
care’ or ‘palliative treatment’.
Home care assistants, social
workers, physiotherapists and
volunteers are also available to
help you with practical things, the
financial situation or to help you
deal with the emotions and reactions
you are going through. Caring for
someone at the end of their life can
be done at home, in a hospice, or in
hospital. It depends on what feels
right for your parent and for the
whole family. It can also depend on
what kind of problems your parent
has and where they can best be
treated.
Stays in hospitals or hospices can be for a short period until the patient is well enough to return home, although occasionally the stays are sometimes longer lasting and the patient may never return home. Some hospices have day centres where people go for a day or two per week. Others have both day centres and in-patient beds where patients go for short stays to help get the right treatment for pain control and symptom relief. These short term stays are also known as respite care and they give family members a break from caring.
Coping with emotions
It is important to remember that there is no right or wrong way to feel or react when you know that you are about to lose someone you love. Wherever your parent chooses to be at the end of life, there are services available to help with all the issues that you are going through as a family. These can include medical help, practical help and emotional and spiritual support.
It is usual that you, your parent and other family members will experience a lot of disruption and change during this time. Changes in routines and carers may occur and if your parent is cared for at home, it is very likely that your home will feel different as you may have lots of health professionals coming in and out at all times of the day
and maybe night. You may also find that your friends, relatives, teachers and neighbours treat you differently as they may be unsure
about what to say or do.
It is likely that you and your
parent will feel a range of emotions
like sadness, disbelief, anger, relief and guilt. These feelings will come and go
with different intensity as time goes on
and your parent may be getting
weaker. Questions such as why my
parent, why now, are common as is bargaining for more time (if he/she can only live until my birthday etc). If you find yourself bargaining, take note as sometimes this can help you work out what you want to achieve in the remaining time left. Talk over your hopes and fears with your parent or someone else who you trust. This can help relieve anxiety about leaving things unsaid or undone.
Sometimes during this period people feel lost for words. This is ok. It is natural to cry and you do not have to pretend to be brave when you do not feel it. You may find that you begin to relive at lot of memories and feel the need to 'put right' anything that is worrying you. Your parent will probably be going through a similar process. Like you, they will be feeling sad, lonely and isolated. They will also be grieving over losing you and other family members. Some parents help themselves prepare for death by writing letters to those who are close to them, or making a scrap book or a videotape so that family members have something to remember them by. Although these can be
very sad things to do, they can help and be satisfying
as they can help people reflect on
things – thinking about things very
carefully. This can help making
thoughts and feelings more
manageable. You too may want to make something for you or your parent that will help you during this time. Make sure though that you only do what feels comfortable and right.
It is important that you stop and
think if there is anything
particular you want to say to or do
for your parent. This can make you
feel better so that you don’t blame
yourself later on for not having
said and done things you wanted to. Do not push yourself if you don't feel it's right for you. Try to take one day at a time and make the most of it.
The doctor may have given you a rough idea of how long your parent has left to live.
If this is the case, it is important
to know that such an estimate will
not be exactly accurate, as it is
almost impossible to know the
precise answer to this question. We
often see that people can live much
longer than the doctors thought.
Because the doctors do not want to
give false hope or cause false fear,
they are often very reluctant to say
anything about how long someone has
left to live. |
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 | | History of Cancer |  |  |  | | Read about the history of cancer through the ages>> |
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 | | Carla, aged 17 |  |  |  | | It is always hard to lose a parent, and I would never wish it on my worst enemy but it does get better.>> |
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